What techniques do you think we’ll develop to keep drones out of stadiums and other pricey sports events? Will there be bootleg Olympics broadcasters the way there used to be pirate radio stations? How do you run security checkpoints when you can simultaneously fly hundreds of twenty-dollar drones carrying dirty bomb material over the walls at an infinite number of weak points?
Depression has been kicking my ass for the last eight weeks.
A major contributing factor is my doctor reduced my meds. I was pretty shocked. I’ve been on them since 2001, and there’d been no discussion about this being a possibility. I asked why. She replied, “Well, you’re not as fat anymore.”
Since I lost my job in 2016, I lost weight. Partly because I can’t afford snack food, but mostly because I’m not commuting three hours a day, leaving the house at 5.45am, mainlining caramel lattes all day to keep me going, and falling exhausted onto my couch at 8pm with barely the will to inhale a pizza before I collapse into bed (spoiler: I still inhaled the pizza. The whole pizza).
For clarification, my doctor didn’t mean a weight/dosage thing. No, according to my doctor, because I’m not as fat now, I don’t have reason to be as depressed.
The consultation was the day before I moved. I didn’t have the spoons to argue with her, or express how outraged I was she assumes depressed people are depressed because they’re fat. I figured I’d give it a go. Although, I stopped my meds back in 2015? 2014? and things went very, very badly.
Sure enough, things have not gone well this time either. I started a reduced dose in early November, and spent the rest of 2017 slowly spiraling down into the delightful & familiar state where I only want to lie in bed all day, without even the strength to try to sleep.
The other contributing factor has been the reality of how much worse my mom is – and how much worse she is getting – between her brain tumor and her MS.
I feel guilty at leaving my grandmother in Auckland. And I feel pissed off at my cousins and aunt for implying through their shocked silence I’m a neglectful granddaughter and should have moved her down here to a facility close to me. You’re supposed to know the limits to your own capacity, though, right? And dealing with my mom now is going to be all I can manage.
I struggle with the knee-jerk reaction that because my mom can’t go out without me, I shouldn’t go out without her. It seems utterly unfair. How can I expect her to watch me happily heading off to experience the outside world, when she cannot?
Because of this, I screwed up.
I signed up to a beginners yoga class starting last week because I wanted to make new friends in this city. But then I felt like a piece of shit because I was going to get to go and meet humans and move my body. And I crumbled under the guilt and screwed up and asked if she wanted to go with me. And she eagerly jumped at the suggestion.
This was a terrible idea because she can’t do yoga. She can’t remember a sequence of instructions, she has terrible body-awareness, and she can’t walk unaided. I felt overwhelmed at the thought of trying to manage her environment for her – to manage her – so she could participate.
But rather than address these issues with her, instead, when the class came around I said I felt sick, and I bailed on something I’d been looking forward to going to.
I know it sucks for my mom, to be trapped without being able to drive, to have language recede from her grasp like a racing ebb tide, to find the world more bewildering each day. But do I have to be trapped by MS, because she is?
It’s like a plane crash, right? Look after yourself, before you look after anyone else. Put my own oxygen mask on first. And if I look after myself first – which means acknowledging I have the right to have a life outside this house – then I will have more energy to look after her.
I need to sit down and work out three things a week my mom and I can do together. Like, a simple exercise class, a visit to a gallery or small township, and a movie. That seems pretty good. And reasonable. And when NZ life kicks back into normality in February there will be MS Society activities she can join, to which I will drive her.
I’m trying to remind myself I cannot be everything for my mom, even when I am trying as hard as I can. That I’m not wrong or selfish for wanting to create my own activities outside of her life.
I’m also rereading The Art of Taking Action: Lessons from Japanese Psychology.
This book helps me. Gregg Krech shares the concept of arugamama. Right now I feel depressed and sad, and I accept that. I don’t wish I felt otherwise. I do not try to escape my experience of feeling depressed and sad. I adopt a state of non-resistance. I feel how I feel, but continue to devote myself to what it is important to me to do: my life’s purpose. I invite depression to accompany me as I write.
Action isn’t something that will come after getting over my depression. Action is a way of getting over my depression.
So, I’m depressed. And I’m practicing non-resistance. And I’m writing. And trying to get un-enmeshed from my mom. And most importantly, I’m going back on my full dose of meds.
My friend Kate and I are doing an exciting 2018 challenge: using up all our journals and pens. And not buying any new ones. This is going to be tough for me, but the gods know I own enough to get through. So in a year’s time I’ll be posting a pic of my empties and a stack of my filled notebooks. Join us!
My friend Katie also challenged me to not read any books about writing this year. This I’m not sure I can do, mainly because I own a hell of a lot that I haven’t read yet and I’m excited to try, like Linda Barry’s Syllabus. Or Views From the Loft. Or Words Overflown By Stars. But I’m going to stay away from all the generic titles promising to teach me how to Write Your Best Seller Without Getting Out Of Bed, of which I have inhaled far too many in the last 36 months. And I can definitely not buy any writing books this year. And I’m absolutely not reading ANY time management, anti-procrastination, motivation, or self-management books this year.
But most importantly, my focus for 2018 is writing and releasing books. That’s it. That’s all that matters.
I’ve been in my new home for five weeks. I’m in love: with the house, with this city, with my garden. I miss the ocean, but the beach is a 30 minute drive away, even though it’s the fierce, cold Tasman Sea, not my familiar Pacific.
Instead I get to walk beside the mighty Manwatu River. I found a great riverside trail, and if I walk to the Fitzherbert Bridge then back along the streets it’s a nice, even five miles.
Admittedly it doesn’t look so mighty right now.
They had floods here in July, but now we’ve had no rain to speak of in months, although it’s not an official drought, because that would give farmers some government relief the government is clearly reluctant to offer.
Schools just let out for the summer break, and it’s 82F every day. In the afternoons I nap on a quilt, in the shade of the ornamental cherry tree, where the breeze keeps the heat down, while the starlings and wax-eyes flutter overhead.
I’m treasuring how calm and peaceful things are here.
In August last year my mom was asked to take medical leave from her work. On 31 December 2016 we found out my mom had a brain tumor, and because of the brain damage caused by her MS they won’t operate. She had to take retirement. We spent the year traveling all over the country looking for our new home, while we also waited for the condo to sell.
Thank you, universe, from the bottom of my heart, for sending me a buyer. Thank you, universe, for guiding me to this new house.
My mom had to give up driving, and I’ve watched as her memory and language skills decline weekly. My grandmother fell and broke her hip, and needed hospitalization, and I went to the United States anyway, because getting away to travel isn’t going to be so possible in the future.
I only published one book, and I forgive myself, because I didn’t just survive 2017, I sold a house, bought a house, moved to a different city, and most importantly, met treasured friends in the flesh. I fulfilled a dream I’ve had since I was six years old, and went to Disneyland.
I’m joyful, and revived, and eager to greet 2018.
My mom was a kid during the Cold War of the 1950s. She knew there’d be a nuclear war. I was a kid during the Evil Empire era of the 80s. I knew there’d be a nuclear war. What point was there in trying to do anything when I wouldn’t be growing up? And now here we are again. I have no idea what’s going to happen, but I do know we have each other, and the connections we forge. We have the words we write, the art we make, the code we design, the smiles we share, the pets we snuggle, the joy of oxygen going in and out of our lungs. Under our feet lies a planet in the Goldilocks zone: we already beat the odds.
We get today. Let’s do something with it.
Today I am writing to this song cranked on repeat all day. The tones dissolve into my synapses in raindrop circles until the words flow.
New Zealand is full of the most amazing tiny places I’d never heard of. I’m so grateful I’m getting to know my own country better.
This is a piefee. It’s a latte served in a chocolate-lined sweet pie crust.
Tasteful Bakehouse on Karangahape Road has made a local media splash with their 2017 creation. My only beef with it is meat pies are far more of a Kiwi culinary tradition than sweet pies. Sweet pies exist, but more people grew up on apple crumble than apple pie. To me this is a coffee tart. A toffee? A tarfee? Cofart?
I feel 100% certain if I google I am going to find this idea has been done in a thousand other media posts in dozens of countries before now, but I refuse to burst the bubble of Chamnan Ly from Tasteful Bakehouse. Good on you, mate.
Thank you, humans who buy my books!
I’ve sold 22 copies of Salt of Your Tears, and a bunch more read it on KU. I earned USD $79 from it, which pushed my US Kindle earnings over my $USD100 minimum payout, and I just banked a cheque, wooooo. Y’all have paid my June electricity bill and kept me warm and functioning for another month and I am so, so grateful. I wish I knew everyone’s names so I could thank you all personally. I literally do know the names of quite a few of you and squishy hugs will be forthcoming in October.
Viewer advisory: historic transphobia.
This was a huge hit in NZ in 1982/83. The subtext in the narrative completely passed me by at the time. On the plus side: the video perfectly captures NZ fashion in the early 80s.